Earlier this year Jessica and Gabi in BeGOOD’s blog ‘Should young people get genetic testing?’ examined the positive and negative implications of young people opting to undertake a genetic test. Here Lamis Hamdi looks at the NEUROSEC research that she’s been part of to investigate the ethics of predictive genetic testing in Alzheimer’s Disease and the values,… Read more »
Ashley, a Youth Leader for the Lancet Commission on Global Mental Health, shares her views on mental health and experience of being part of the ‘My Mind Our Humanity‘ young people’s campaign, created with support from the BeGOOD Citizens EIE study to advocate for young people’s values, preferences and experiences to be integrated in… Read more »
Back in 2000, I was finishing up my PhD and wondering what to do next. Not unusually, I was a bit panicked. Would I get a job? Would I get funding? How should I follow up my PhD research? Actually that last question was easy: for my PhD I had investigated the social and moral… Read more »
The critical literature on early childhood has grown in recent years. So much so, that in the UK, Routledge (an academic publisher) has an entire series entitled “Contesting Early Childhood”. One of the latest titles in the series is Constructions of Neuroscience in Early Childhood Education, which follows other titles such as Alternative Narratives in Early Childhood,… Read more »
In 2016, the Neuroscience, Ethics and Society Group started a Young People’s Advisory Group (YPAG) in Oxford. You can read about why and how we did this here. After a year of meetings we’ve reflected on the good (and bad!), and have created a list of FIVE things to consider when developing an Advisory Group. But… Read more »
A year ago, on the 23rd of June 2017, the BeGOOD Team hosted an exciting event that brought together leaders of non-profit organisations, policy experts and researchers to discuss their approaches to early intervention (EI) and ethics in mental health. Panels revolved around four core themes, all of which are central to… Read more »
Would you spit in a tube and pay (about) one hundred pounds to find out your future health? A number of companies, including 23andme, Counsyl and DanteLabs, now allow customers to submit their saliva samples to find out if they carry genes associated with conditions such as Alzheimer’s disease, Parkinson’s and even breast cancer (for… Read more »
Autism, Parent-Blaming and False ‘Cures’ Once again the mainstream autism field risks blaming parents for the cause of autism. This time, through studies often funded by relative-led organisations. The “refrigerator mother” hypothesis blamed supposedly cold parenting for autism. Some of the families who were socially isolated and even split apart by this way of thinking… Read more »
By YPAG member Louie Glover The term “young person” usually refers to someone between the ages of 14 and 17, so legal rights of a person within this incorporating term varies, almost yearly. The law is complex but I feel it is necessary to present a quick outline of the major laws for young people… Read more »
Introduction Many years ago I heard a teenager screaming to her mother “You are a worm that enters the brain of your own child to drive her crazy!” In those days, blaming mothers for the mental health of their offspring was still a rather private business. Nowadays, the subject has entered the public debate, “in… Read more »